Count of Regular Home-Care Clients in Social and Health
Care, 30 Nov - Description of File
20 Jan 2010
(Description of file, in accordance with the Personal Data Act
(523/1999))
1. CONTROLLER
Name: National
Institute for Health and Welfare (THL)
Postal address: P.O. Box 30
Postcode: FI-00271 Helsinki
Street address: Lintulahdenkuja 4, 00530 Helsinki
Tel. +358 20 610 6000
2. PERSON RESPONSIBLE FOR THE
REGISTER
Name: Päivi Tossavainen
Position: Development Manager
Tel. +358 20 610 7670
3. OTHER PERSONS MAINTAINING THE
REGISTER
Name and tel.: Raija Kuronen, tel. +358 20
610 7477, and Kirsi Seppälä, tel. +358 20 610 7380
4. NAME OF THE REGISTER
COUNT OF REGULAR HOME-CARE CLIENTS IN SOCIAL AND HEALTH CARE, 30
NOV
5. GROUNDS FOR MAINTAINING THE
REGISTER
Statutory.
- Act on National Personal Data Registers Kept under the Health
Care System (556/1989), section 3
- Decree on National Personal Data Registers Kept under the Health
Care System (774/1989), sections 1 and 2, as amended by decree
(1671/1993)
- Act on the National Institute for Health and Welfare (668/2008),
section 2
- Act on Specialised Medical Care (1062/1989), section 5(3),
Primary Health Care Act (66/1972), section 4, Mental Health Act
(1116/90)
- Act on the Statistical Service of the National Research and
Development Centre for Welfare and Health (409/2001)
6. PURPOSE OF THE REGISTER
To
collect data on home care, service providers and clients for
statistical, research and planning purposes.
7. DATA CONTENT OF THE
REGISTER
Since 1995, data for the Count of Regular
Home-Care Clients have been collected every other year. From 2007
onwards, the count has been conducted each year. Although a few
minor changes have been made over the years, the core data content
of the Register has remained almost unchanged, describing service
providers, clients, client admissions, and the care and services
received by clients.
Data suppliers are provided with a manual on submitting
annual data for the Count of Regular Home-Care Clients (HILMO;
Sosiaalihuollon ja terveydenhuollon hoitoilmoitus. Määrittelyt ja
ohjeistus, THL Ohjeita ja luokituksia).
Data content of the basic data form for care notifications
(applies to the Count of Regular Home-Care Clients, 30
Nov)
Service provider
1. Code
2. Code extension
Data on the patient/client
3.
Personal identity code (in the register, this code is replaced with
an encrypted code and subsequently deleted)
4. Municipality of residence
5. Postcode
6. Type of permanent accommodation
Data on start of care
7. Date of admission to care
8. previous care place (place from where the person has come into
care)
9. Code for the place of discharge
10. Code extension for the place of discharge
11. Reason for seeking care
Data describing care register data and grounds for
clienthood
12. Primary diagnosis
13. Secondary diagnoses
14. Need for care at the time of count
15. Appropriate care place
16. Plan for services and care has been drafted (yes/no)
Additional data concerning home
care
17. factors that impact negatively on
living
Services received during the previous
month
18. Home-help visits
19. Home-nursing visits
20. Joint visits (cannot be separated)
21. Day-hospital visits, day-care visits by older people to
residential homes/service centres
22. Total number of service days
23. Total number of working hours
24. Support services (yes/no) and type of support services
25. Support for informal care (yes/no)
26. Other support (free of charge to municipalities)
(yes/no)
Other information
27. The community that has commissioned the outsourced services,
and its code
8. REGULAR DATA SOURCES OF THE REGISTER, COMPILING
THE REGISTER
The HILMO manual includes guidelines
on
which service providers are obliged to submit information to the
Register and what the grounds for the disclosure of data are;
what constitutes data content;
how to submit information to the Register; and
how to ensure data confidentiality.
The care notifications are annually compiled into the
national register for the count of regular home-care clients. The
data are sent to the register controller primarily on discs or
magnetic tapes. Some of the notifications are sent on paper
forms.
9. REGULAR DISCLOSURE OF REGISTER
DATA
Disclosure of register data is governed by section 4 of the Act on
National Personal Data Registers Kept under the Health Care System
(556/1989), which stipulates that data can only be disclosed for a
specific research project and by permission.
10. LINKING THE REGISTER TO OTHER PERSONAL DATA
FILES
Data in the register for the count of regular home-care clients are
used for statistical purposes together with the Care Registers for
Social Welfare and Health Care in order to describe the use and
costs of services and the distribution of services among different
population groups, broken down by region.
11. ACCESS TO DATA, CONFIDENTIALITY
The data stored in the Register are confidential under section 4 of
the Act on National Personal Data Registers Kept under the Health
Care System (556/1989).
However, THL may grant permission to disclose care
register data for specific scientific research purposes under
section 4 of the Act.
The disclosure of data shall be in accordance with section 19 of
the Personal Data File Act (471/1987).
THL may grant permission to disclose personal data for specific
scientific research purposes under section 5 of the Act on the
Statistical Service of the National Research and Development Centre
for Welfare and Health (409/2001). The disclosure of data shall be
in accordance with section 19 of the Personal Data File Act
(471/1987).
Statistical information and data sets stored in the
Register can be disclosed, provided that any information classified
as confidential has been removed and the data subjects cannot be
identified.
12. NUMBER OF PERSONS STORED IN THE PERSONAL DATA
FILE
The Register covers data on some 80 000 persons,
based on information submitted by some 730 service providers during
the data collection.
13. RIGHT OF ACCESS TO DATA
Data
subjects and their representatives have no right of access to the
data entered into the Register, because the data are used solely
for research and statistical purposes.
14. RECTIFYING ERRONEOUS DATA
Once an error is detected in the Care Register, efforts are made to
correct it in connection with the Register's normal compilation and
maintenance procedures. Data suppliers themselves are usually asked
to correct any errors or deficiencies detected in their
data.
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